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Cancer and Kindness and #BeKind21

Caitlyn Littrell is Executive Assistant at Born This Way Foundation

Cancer has been a main character in my life for fourteen years. My beloved grandfather passed away from esophageal cancer on Christmas Eve, 2004; two weeks later, my mama was diagnosed with ovarian cancer—which she fought bravely for eight years before she passed away in 2012; and I was diagnosed with stage IV breast cancer three weeks before she died. I was 28 years old, happily married to my college sweetheart, Ryan, and mama to three little boys. My cancer journey has been a gut-wrenching, horrible, beautiful, faith-building, humbling experience. While I have always believed in the importance and power of kindness, the refining nature of my cancer battle has shown me the saving and restorative powers of kindness. I am a story-teller by nature, and the best way I know to explain what I mean is to share a story:

Since my cancer was so advanced, I will always be a cancer patient who needs regular infusions. The main infusion I get is called Hereceptin, and I go to the cancer center to receive it every three weeks. I hate to admit it, but I often feel pretty sorry for myself on the drive to my Herceptin appointments. I try to bolster my self-pity with reminders that it’s not as bad as chemo, my disease is totally managed, Herceptin is a miracle drug, etc. These thoughts help, but honestly they’re mostly drowned out by the reality of how sick I’m going to feel for the next few days and that I have to do this every three weeks FOR THE REST OF MY LIFE. So I drag my feet a bit.

However, I always leave these infusion appointments overwhelmed with gratitude. Because while I’m there I see the people who are still in the thick of their cancer battles; I see people who are being destroyed by the chemo that is destroying their cancer; I see people who smile anyway and are kind despite their pain; I see people who are longing to be at the stage I’m at. Self-pity can’t survive that environment. So I leave with praises on my heart. My current story may include Herceptin, but at least it doesn’t include active cancer and grueling chemo.

During one of my Herceptin appointments, I met someone who changed my perception of my treatments forever.

I often have wonderful conversations with the nurses and the other people getting treatment around me. People in the cancer world are almost always exceedingly kind, because they know everyone around them is living out a very hard tale. This camaraderie and friendliness is often a big part of lifting my spirit, and I make it my goal to bless the people I speak with and to listen well.

On this particular day, I started off as the only patient in the treatment room. My nurse and I chatted amiably as she plugged me in, and then I was left in silence to read my book (truly a treat in my life full of boisterous boys). I was fully engrossed when a beautiful lady and her husband followed my nurse to the chair next to me. The woman relied heavily on the cane in her right hand, and I could tell each step was painful. But I was taken with her grace and dignity and the way her husband looked at her with love and veiled concern. There’s no way to avoid eavesdropping in those close quarters, so I soon learned this was her very first chemo to treat breast cancer. My heart clenched as I remembered my first appointment, the uncertainty and fear mixed with relief at being able to tangibly fight back. I couldn’t help but notice this woman and her husband were a lot like Ryan and me, just a couple decades older. The husband cracked jokes all throughout the chemo orientation, making the woman giggle and the nurse smile. Ryan often made me laugh during the most dire moments, breaking fear’s hold on me.

I didn’t want to interrupt, and my treatment was almost done, so I wrote my name and information on a piece of paper, planning to hand it to her on my way out. After the nurse came over to unplug me, she paused and said, “Caitlyn, do you think you could speak to Kathy about your experience with your port?” My heart leapt at the opening, and I turned to the women eagerly.

Our conversation only lasted about five minutes. She had lots of questions, and I had lots of answers. For good or ill, I was a veteran of this battle and had a lot to share about ports, side effect medication, natural remedies, and helpful foods. We both smiled a lot as we talked, and her husband smiled at us smiling. I saw her grip his hand and grin at him, and I could read her thoughts. They both saw me as a light at the end of their tunnel—proof that there was an end to this cancer tunnel after all and even some smiles to be found there.

I reminded her I truly meant it when I said it was ok to call about anything, and I turned to gather my stuff. Ryan and the boys were waiting for me outside the hospital. “Caitlyn,” she said right before I turned to leave, “I believe God sent you here today to give me hope. You have lifted my heart in a way I didn’t think was possible today. Thank you.”

“You’ve lifted my heart too,” I answered.

As I left the building, I was struck with the beauty of her words.

Funny how even painful things become purposeful when I forget myself and realize there’s a lot more at work than my own journey.

I was overwhelmed at the privilege I had to reach that woman and her husband at the beginning of their chemo journey. While past Herceptin experiences made me thankful for my current situation, I was suddenly filled with gratitude for the hard journey behind me. Without that road, I wouldn’t have this exclusive access to people’s hearts when they are in a vulnerable state.

They don’t let just anyone into cancer centers. All the centers I’ve been to have had strict rules about who can enter. Patients’ weakened immune systems and the desire to minimize how traumatic the experience can be led to lots of rules about who is allowed. I have had a heart for people struggling with cancer for many years, but it wasn’t until I was a cancer patient that I got a ticket into their inner circle.

I have found that one of the first steps in being kind to others is realizing my exclusive access to their lives. The people I’m around every day—whether in line at Trader Joe’s, shoulder-to-shoulder at the movies, across the room at the cancer center, or across the table on a coffee date—are my exclusive access in that moment in time. I’m the one who gets to lift their spirits, listen to their stories, and sometimes even help them find a solution to their pain.

I am not perfect at always recognizing when I should look up from whatever I’m doing to take advantage of this access, but every time I do, I know that I am part of a bigger story – one in which we are all connected and all capable of making each other’s lives a little bit easier. I have been on the receiving end of this form of kindness in big and small ways (numerous meals on treatment days, Starbucks gift cards, chocolate chip cookies on my doorstep, people watching my boys when I had surgery, and even a trip to Hawaii from my friends to celebrate getting through my first year of fighting cancer). I am so grateful for the chance to live each day as an opportunity to pass this kindness along.

Pledge to be kind to yourself and to your community – in big and small ways – by signing up for our #BeKind21 challenge: http://bornthisway.foundation/bekind21

We Commit to #BeingKind21 by Supporting Teen Bravery

Claudia is Associate Research Scientist at the play2PREVENT Lab of Yale Center for Health & Learning Games and Licensed Professional Counselor at Connecticut Psychiatric & Wellness Center. She specializes in designing, developing, and evaluating teen interventions, including video games, to promote healthy behaviors.

Tyra is Associate Director at the Yale Center for Health and Learning Games and the play2PREVENT Lab. She specializes in developing and evaluating video games interventions to promote health behavior change. She also oversees the ForAGirl Program.

“School shootings are happening in our high schools and we are scared that it could happen to us. So we want to spread awareness on this crucial issue,” said one of our ForAGirl Scholars  from the play2PREVENT (p2P) Lab at Yale Center for Health & Learning Games as she presented her group’s video game intervention. In this presentation, she and her group outlined the design of a video game intervention that addressed school safety.

The heaviness of her statement struck a chord in everyone in the room. All eyes were on her as she spoke. She spoke with conviction, concern, bravery, and a deep commitment to address what was noticeably distressing to her and her peers all while maintaining her lively disposition that she had become known for throughout the program. School may have once been considered a safe place, but today may be different. And, she would like to be part of the solution by designing an innovative video game that promoted positive peer exchanges in school.

What is moving about the above story is her bravery to address the cause. Teen bravery is palpable. You can feel it when you observe it – it is contagious, exciting, and inspiring. Other scholars from the ForAGirl Program noted climate change as a concern while others noted implicit biases related to race/ethnicity.

The reality is that teen voices are powerful and we need them more than ever to guide the work being done in schools as well as face the many challenges outside of school as well. In addition to being important voices to be heard, supporting their action and advocacy in addressing these issues is essential as we continue our work with them. We know that teens are experiencing depression and anxiety at higher rates as compared to other generations, so we need to listen more and support their development in becoming change agents.

Our future needs them.

In our team’s commitment to the #BeKind21 challenge, our focus is on how to better support and encourage the voices of our teens, we – as members of the p2P Lab – commit to:

  1. Ensuring that teens inform every step of our process in designing, developing, and evaluating video game interventions to support them
  2. Listening to the challenges that they face AND to the solutions they suggest
  3. Encouraging them to have fun with us! We all know that the more comfortable people feel, the more they are likely to share openly and honestly
  4. Promoting kindness along the way through every exchange with teens – whether it be a giving a smile, sharing a meal, or cheering them on throughout each step of the way – these actions can have an enormous impact and help build teen confidence to take on this important work

In everything we do at p2P, teens voices are not only important but necessary as we develop interventions that are informed by them. Join us in making teen voices front and center for the next 21 days and beyond!

Pledge to #BeKind21 today at http://bornthisway.foundation/bekind21!

The teen brain is wired for kindness

Karissa Bailor is an incoming freshman at Northwest Christian University

Kate Mills is an Assistant Professor in the Department of Psychology at the University of Oregon and a member of the Center for Digital Mental Health. She researches the intertwined social, biological, and cognitive processes that underlie the development of social navigational skills.

Teenagers are often portrayed as self-centered and obsessed with fitting in with their peers. But the tasks of adolescence – the period between puberty and assuming a relatively stable role in society – are many. Many teenagers are tasked to juggle classwork with employment or extracurricular activities while they’re simultaneously expected to figure out how to form and maintain relationships of all kinds: family, friends, and romantic partners.

Fortunately, the teen brain is perfectly prepared to tackle these challenges. The ability to multitask and take other’s perspectives increases during adolescence. Having a malleable brain during adolescence is arguably adaptive for learning how to balance increasingly complex social lives. And teenager’s heightened sensitivity to social cues and increasing ability to integrate knowledge could even mean that teenagers learn higher level cultural rules with greater ease than children or adults. In contrast to commonly held stereotypes, teenagers are actually amazing for being able to take in all the new perspectives that come with growing into adults ready to take on the world. But teenagers can experience difficulties in learning how to process all this new information and balancing a social life and school work with whatever else one chooses to do with the little extra free time leftover.

Research using brain imaging techniques have demonstrated that the brain’s structure and function are changing in dramatic ways during adolescence. Grey matter in the outer rim of the brain (called the cortex), where many brain cells and their connections are located, is actually decreasing substantially in several areas of the brain. But decreasing grey matter is not thought to be a bad thing – it’s actually an adaptive process that can help the brain eventually become more specialized.

In the same way that a rose bush is pruned so that the stronger branches can thrive, the connections between brain cells that are most used are kept and the weaker connections disappear.

While the grey matter is decreasing, the white matter of the brain, which consists of the large insulated fibers that connect together different parts of the brain, is increasing in size during adolescence. Because these changes in the brain can be impacted by the environment and behavior, teenagers have the ability to impact their brain’s developmental trajectory in a way that children and adults cannot. While children’s brains are still malleable, they typically don’t have the same level of agency as teenagers; and while adults have more agency than teenagers, their brain’s are not as malleable as the teen brain.

This adaptability is one big aspect of the brain during the teenage years. Another aspect relates to the functionality of the brain during this time. Areas of the brain involved in motivation and learning are more active than in childhood and adulthood during social contexts. Social contexts are very salient and teenagers are rightfully motivated to learn about social norms as well as about the specific people they are forming relationships with. Previous research has focused on this sensitivity as it relates to behaviors such as risk taking and impulsive decision making, but more recent research has demonstrated that this sensitivity to social cues and heightened motivation can also promote prosocial behavior! Research from labs all over the world are starting to investigate just how the teenage brain might be wired for kindness and prosociality.

Research conducted by Dr. Jorien van Hoorn and colleagues has demonstrated that teens are more likely to engage in prosocial sharing behavior after experiencing prosocial feedback from peers. Dr. van Hoorn’s research has also shown that areas of the brain that are more sensitive to peer influences are also involved in decision to donate, which might be one reason why increased social sensitivity in adolescence is related to greater opportunities to engage in prosocial behavior. This research suggests that prosocial acts can spread like wildfire within teenage social networks, as modern examples such as the Ice Bucket Challenge can demonstrate.

Thinking about how these changes may impact the way students interact with educational environments is also important – considering these environments are often just as social as they are learning–oriented. However, the current school environment could use some improvements as most schools do not have the necessary support needed to help teenagers. Maintaining a social life in high school can be difficult for some because of the pressures of increased workload, including extracurricular activities and jobs, and also familial expectations. Trying to make friends and maintaining those relationships require a lot of time and care, as do romantic relationships. School environments that value and address the increased complexity of relationships during middle and high school could experience reverberating positive effects from the kindness inherent in teenagers.

I’m Proud of You…Dad!

David B. Smith is CEO of X Sector Labs and currently working with the State of California’s Mental Health Services Oversight and Accountability Commission to create an incubator for mental health innovation. He is also the husband of Maya Enista Smith, BTWF’s Executive Director.

Today’s blog discusses suicide which may be triggering to survivors or to the family and/or friends of victims. If you or someone you know is struggling with suicidal thoughts, please seek help. You can call the National Suicide Prevention Lifeline 24 hours a day or reach out to one of the other resources listed below for assistance.

 

“I’m sorry to put you through this Dave. I love you. HOOAH.”

Ping! This text woke me up on January 25, 2009. It was from my Dad, and I knew exactly what it meant. I was about to lose my father.

I called him back immediately, and the phone went straight to voicemail. I cracked open my laptop and began a very personal game of Carmen Sandiego. I logged into my Dad’s bank accounts and credit cards to track their last use. To my surprise, I saw a week worth of charges migrating east from Phoenix (where he was living at the time) to Washington DC (where I was living at the time). Was he outside?

I slammed my computer shut and ran out my front door, hoping to find him sitting on my stoop. He was not. I looked up and down my street hoping to see his British Racing Green Jaguar parked nearby. It was not. I walked down the block to Logan Circle praying to see him sitting on a bench. That prayer was not answered.

I went back inside, signed up for a Zipcar, loaded my puppies in the backseat, and proceeded to circle my Dad’s favorite DC spots like a hop-on / hop-off bus, from the Tidal Basin and the Mall to Arlington National Cemetery.

Out of ideas, hope, and tears, I returned to my car and drove home. I walked through the door, went to my room and laid down. The moment my head hit the pillow, a disruptive knock shook my door and the whole apartment. I jumped up, ran to the door, swung it open, and was never the same.

Two DC police detectives stood in my threshold and simply asked, “Are you David B. Smith?” Inside, my heart burst and fell to the floor sobbing. Outside, I felt like I was in a cameo of Law and Order and welcomed the detectives into the house. They fumbled for a minute trying to the find the words until I blurted out, “Did you find my Dad?”

“A king, realizing his incompetence, can either delegate or abdicate his duties. A father can do neither. If only sons could see the paradox, they would understand the dilemma.” – William Shakespeare

Relationships between fathers and sons have been complex since the dawn of time. Books have been written about why and wars have been fought over it. From my experience, a root cause of this revolves around the seeking and granting of approval – in other words, are you making your dad proud (and will he ever tell you)?

Striving to make my Dad proud was a core motivating factor of many of the triumphs and failures in my life. No matter what I accomplished, the awards I won, the sports I played, it always felt his approval was just out of reach. As a dad now myself, I understand that you always want your kids to be better, to excel, to improve, and to realize their full potential. You want them to accomplish more than you ever could, and this can manifest by holding the worm of approval just out of reach as they leave the nest and spread their wings. However, offering validation for effort and results doesn’t hinder progress, it accelerates it.

My Dad grew up in poverty, moving regularly, often food insecure, and occasionally homeless. He had a working father, three brothers, and a mother with mental illness. My Dad was a brilliant man. Growing up in the Sixties in California, he had various paths ahead of him but only one true calling. While others were burning their draft cards, he dropped out of high school to join the Army and volunteered for Vietnam. Serving our nation in uniform was an honor and responsibility, a path his father, his father’s father, and his father’s father’s father had followed. Ultimately, he wasn’t sent to Vietnam, yet he served in uniform for two decades.

My Dad retired after 20 years of military service when he was just 39 years old. In the Army, he found comradery, challenge and purpose. Beyond the armed forces, he struggled to find any of those, except through raising his children. He tried law school, journalism, disaster relief, retail, and banking. The lack of pride and purpose he found through his encore career was compounded with growing mental illness.

Growing up, I thought my Dad was half superman and half jerk. At times, he was the most interesting man alive, telling unbelievable stories, dispensing sage advice, speaking numerous languages, schmoozing the room, and taking our family on adventures around the world. Other times, he often felt the world was out to get him and most human interactions were veiled or transparent assaults, and various triggers would send him into spirals of rage. As kids we learned to step carefully, bask in the good days, read his mood, and tune out the yelling when necessary. This was my Dad and my guidepost for all things masculine.

It wasn’t until years later that I came to understand that he was a diagnosed manic, bipolar schizophrenic. While understanding this diagnosis, and more broadly mental health and illness, didn’t excuse the pain his behavior sometimes caused, it did help to provide context. He was fighting a daily battle with the demons in his head and we could only get a glimpse to the status of that battle when he allowed us in.

“All the times that I cried, keeping all the things I knew inside…If they were right, I’d agree, but it’s them they know, not me. Now there’s a way and I know that I have to go away.” – Cat Stevens, Father and Son

Reflecting back on my relationship with my Dad, I now realize more than ever that healthy relationships are two-way. We both need to give to the other to make the relationship fulfilling. While we understand this in healthy marriages, we often view parental relationships as one-sided with the power, learning and teaching all coming from the elder.

My Dad used to play me Cat Stevens, much more “Father and Son” than “Cats in the Cradle.” He loved the line when the father says, “You’re still young, that’s your fault, there’s so much you have to know.” This often preceded a several hour lecture where he dispensed advice based on his own meandering experiences. A father’s job is to teach, while learning can be viewed as weakness. This inherently puts the father’s known experience in a position of ultimate truth and leaves little room for mutual growth.

As I grew older, our relationship began to change and adapt – from the first time I beat him at chess to graduating from college to winning awards for my social entrepreneurial endeavors – and he began to shift from sage on the stage to explorer along my side. In his own self-debasing way, he’d offer the saying, “You can always use me as an example of what not to do.” He also would add, “The hardest day in a son’s life is when he realizes his father is just a flawed man.”

I miss my Dad every day. I miss how he made me laugh. I miss his lectures. I miss our witty banter. I miss traveling with him. I miss debating politics together. Above all, I miss him when I can’t share a new memory, milestone, or realization. I can’t tell him that he was right. I can’t tell him when he was wrong. I can’t share a video of his grandkids singing patriotic songs. I can’t invite him to go to sporting events. I can’t call him after getting a new job. I can’t call him when I screwed up and pissed off my wife. I can’t tell him I take back hurtful things I said. I can’t tell him I forgive him for those he said. With all his flaws, demons, and rage, I want these moments back and wish he was still here.

If given enough time and humility, our relationships with our fathers complete a cycle. We worship and idolize, we seek flaws and hypocrisy, we embrace and empathize, and we teach and learn together. In the end, Dad needed my pride and approval as much as I needed his. He needed my validation and unconditional love. While he may have known deep inside, I should have said it more. I should have told him and shown him how much he meant to me.

“Pride is not the word I’m looking for…there is so much more inside me now.” – Dear Theodosia

Relationships with fathers are complex, especially when complicated with divorce, lost trust, alcoholism, disappointment, mental illness, lack of accepting who we are, or any other divisive experiences that drive us apart. Not the least of these is realizing our dads are just flawed human beings like everyone else. While our childhoods may have shattered with the realization that the superhero cape was just part of the costume alongside the jolly red velvet, our relationships can deepen through empathy, understanding and a little grace.

For those who still have a dad present in their lives this Father’s Day, I encourage you to tell him that you love him, tell him your life would never be the same without him, tell him you need him, tell them you are there for him, tell him all of the amazing things he does to make you feel special, tell him you forgive him, tell him you see who he is, and then tell him that you are proud of him.

For me, I will focus on my son and daughter and begin the day telling them how proud I am of them. I will do my best to wear the cape and be the superhero they envision me to be. However, I will also tell them (and show them) that their Dad has and will fail. I will ask for their grace. I will strive to never let them down, and I will ask forgiveness when I inevitably do. I will try to be humble and treat them as equal members in our relationship. And, I will do everything I can to live a life and be a Dad that will allow them one day to say, “I’m proud of you…Dad!”

Being Fearless

Dr. Fernandes is a mental health & wellness practitioner at Connecticut Psychiatric & Wellness Center and conducts research at the play2PREVENT Lab of Yale Center for Health & Learning Games. She specializes in developing and evaluating teen interventions, including video games, to promote healthy behaviors.

My father is fearless. As a child growing up on the streets of Portugal, he was creative in how to find food to feed himself. He raised himself and navigated the beaches of Estoril so well that he was given the title “King of the Beach.” He even taught himself how to play soccer – shoeless. My father is fearless. When he left the comforts of his childhood home to begin a new life in a foreign country as a teenager, he learned how to speak English and, even amidst struggles, graduated from high school. My father is fearless. When our family experienced financial difficulties, he reluctantly took a job that required him to work abroad in Angola, East Timor, Western Sahara, and later, Haiti. My father is fearless.

On January 12, 2010, Haiti experienced a devastating earthquake. My fearless father, an employee of the U.N. peacekeeping mission, was stationed in Port-au-Prince. The first six hours felt like an eternity as I waited by the phone to hear word from him or anyone, but this feeling was no comparison to the devastating stories of that day. Finally, I got the call: He survived.

My fearless father remained in Haiti to help locals find food and shelter, as well as assist with the evacuation of his colleagues from other countries. I could never describe the degree of devastation he experienced – it is in my father’s heavy eyes of sadness and voice filled with despair, that I know what happened in Haiti forever changed his life.

As a board-certified counselor, I knew my father would need support to navigate his emotions around this tragedy. And so, unbeknownst to him, I immediately contacted several therapists near his home. I called each one and asked specific questions – knowing my father’s personality and needs, and what I believed he would need from his therapist. I came across someone I trusted and immediately contacted my father: “Here is the address of someone who will help. Be there tomorrow at 2 PM.” He didn’t ask questions – he just agreed to go because he knew he needed help. My fearless father trusted me and knew that, in that moment, he needed support.

After my fearless father’s first session, he called me and said: “I can’t believe how much of a release it was to just talk.” It was in that moment that my fearless father experienced the work I do and why it is so meaningful. My fearless father reminded me of his fearlessness in this moment – fearlessness to do whatever it takes to survive.

With nearly one in five U.S. adults and an estimated 49.5% of adolescents affected by a mental illness, the time is now to demand early intervention as well as care and coverage to treat the prevalence appropriately. Estimates suggest that only half of those affected receive treatment. With suicide on the rise, the prevalence is too high to go unnoticed and affects our loved ones, including siblings, partners, friends, colleagues, and so many others. Mental illness does not discriminate against income, race, gender, sexual orientation, age, or any other label.

Join me in taking one step every day to talk more about mental health and destigmatize seeking treatment. Below are some examples of what I intend to do. These are a few of many!

  • Reach out to your loved ones and connect with them. You never know who you may help through kindness!
  • Pledge to become a Mental Health First Aid’er: https://www.mentalhealthfirstaid.org/take-a-course/find-a-course/
  • Educate yourself by joining your local chapter of the National Alliance on Mental Illness (NAMI): https://www.nami.org/
  • Share your stories. Being vulnerable is a strength – by sharing your personal stories, we develop connections with one another and feel supported by our social networks. Opening up may help someone feel less alone.